Mental Illnesses are not curable at this point, but they are recoverable and people can live healthy productive lives while managing their illness.  The Pima County Peer and Family Support Coalition is sponsoring a “Town Hall Meeting” to promote a bright future for our youth currently receiving behavioral health services. “Journeys of Peers and Families,”  an event to enlighten our community about the realities of mental health recovery, will engage attendees with real life stories from a panel of adults and youth currently in recovery.  Since recovery also depends on a support system,  family members of those with mental illnesses will also share their compelling  standpoint.

The evening begins at 6:00 pm and will be held at C.P.S.A, at 2502 N. Dodge, Suite 130 in Tucson. Light refreshments will be served  Reservations are requested to (520) 770-1197 and child care will be provided if required, so please request upon confirmation.

The event is supported by local non-profits, MiKid, HOPE, Inc., and CFSS.

(Below is the Proclamation making May Mental Health Awareness Month)

BY THE PRESIDENT OF THE UNITED STATES OF AMERICA

A PROCLAMATION

Today, tens of millions of Americans are living with the burden of a mental health problem. They shoulder conditions like depression and anxiety, post-traumatic stress and bipolar disorder — debilitating illnesses that can strain every part of a person’s life. And even though help is out there, less than half of children and adults with diagnosable mental health problems receive treatment. During National Mental Health Awareness Month, we shine a light on these issues, stand with men and women in need, and redouble our efforts to address mental health problems in America.

For many, getting help starts with a conversation. People who believe they may be suffering from a mental health condition should talk about it with someone they trust and consult a health care provider. As a Nation, it is up to all of us to know the signs of mental health issues and lend a hand to those who are struggling. Shame and stigma too often leave people feeling like there is no place to turn. We need to make sure they know that asking for help is not a sign of weakness — it is a sign of strength. To find treatment services nearby, call 1-800-662-HELP. The National Suicide Prevention Lifeline offers immediate assistance for all Americans, including service members and veterans, at 1-800-273-TALK.

Our commitment cannot end there. We must ensure people have access to the care they need — which is why the Affordable Care Act will expand mental health and substance use disorder benefits and Federal parity protections for 62 million Americans. For the first time, the health care law will prevent insurers from denying coverage because of a pre-existing condition. The Act already requires new health plans to cover recommended preventive services like depression screening and behavioral assessments for children at no extra cost to patients.

My Administration will keep building on those achievements. Earlier this year, I was proud to launch the BRAIN Initiative — a new partnership between government, scientists, and leaders in the private sector to invest in research that could unlock new treatments for mental illness and drive growth throughout our economy. We have made unprecedented commitments to improving mental health care for veterans suffering from traumatic brain injury and post-traumatic stress disorder. And we have proposed new funding for mental health programs that will help teachers and other adults recognize the signs of mental illness in children, improve mental health outcomes for young people, and train 5,000 more mental health professionals to serve our youth.

Mental health problems remain a serious public health concern, but together, our Nation is making progress. This month, I encourage all Americans to advance this important work by raising awareness about mental health and lending strength to all who need it.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim May 2013 as National Mental Health Awareness Month. I call upon citizens, government agencies, organizations, health care providers, and research institutions to raise mental health awareness and continue helping Americans live longer, healthier lives.

IN WITNESS WHEREOF, I have hereunto set my hand this thirtieth day of April, in the year of our Lord two thousand thirteen, and of the Independence of the United States of America the two hundred and thirty-seventh.

BARACK OBAMA

The recent suggestion from the NRA to have armed guards in our schools as an answer to increasing gun violence is beyond ridiculous.  “Fight fire with fire” seems to be their mantra.  Well, I have a better one.  “An eye for an eye makes the whole world blind,” – Gandhi.

It makes about as much sense as the law in Arizona that allows people to carry firearms in bars!  Great, “let’s get all liquored up” and and start playing with guns!  Ugh!  Am I the only one that doesn’t understand this mentality?  Don’t get me wrong, I totally support the second amendment, except when it comes to ballistic missiles, 30 round magazines, and other weapons of mass destruction. I understand wanting to protect yourself, but really?  What has happened to common sense? What about fences and security gates like most of the high schools have?

Devastating shootings like the one that occurred in Newtown last month or the one that occurred here on January 8th two years ago need to stop.  There has to be an answer other than putting more guns out there.  As a mental health advocate, I want more education in schools, community groups, businesses, and organizations about the realities of mental illness.  Everyone aggrees that a person who literally mowes down innocents with a high capacity gun needs to have his “head examined.”

Let the conversation start here……One in four families are effected by mental illness.  Treatment success rates for depression go as high as 90%.  One in eight teens experience depression, yet only 20% of them seek treatment. Even treatment success rates for schizophrenia are very high! Should people with a mental illness diagnosis be restricted from gun use?  Not necessarily, but let’s talk about it!

These are the topics of discussion we should be having.  Answers may not come as quickly as the “solution” from the NRA, but increasing arms in our schools is preposterous. The last thing our babies need is an increase in violence and an “eye for an eye” mentality.

Staying out of the heat can be difficult for our homeless population, many of whom also live with mental illness. I have seen a homeless person on more than one occasion totally overdressed during our 100 degree plus days because he either doesn’t realize how hot it is, or he’s afraid to leave his few possessions, including his clothing, behind.

Stay Safe

Educate yourself about the symptoms of heat stroke , such as:

* An extremely high body temperature (above 103 degrees Fahrenheit)
* Red, hot and dry skin (no sweating)
* Rapid, strong pulse
* Throbbing headache
* Dizziness
* Nausea
* Confusion

Individuals living with mental illness may be more prone to heat stroke because some medications alter the body’s response to heat. In addition, people taking specific medications may be at a higher risk of developing Neuroleptic Malignant Syndrome (NMS) , a serious condition that may be connected to high temperatures and the dehydration that can result from heat stroke. NMS and heat stroke have similar symptoms, so it is especially important that people with mental illness inform their doctors of all medications they are currently taking.

Stay Informed

The National Weather Service is the hub of information about heat alerts. The Weather Channel offers a free service that will send updates about heat advisories to your phone.

Stay Inside

On extremely hot days, limit your exposure to the heat and sun, especially during the hottest part of the day. Don’t walk long distances if you don’t have to. Some public transportation systems offer free bus service on days with a dangerous heat index.

Stay Cool

If you do have an air conditioner, change the filter and perform other maintenance that will keep the unit working at peak capacity. If you don’t have an air conditioner, try to spend a few hours a day in an air-conditioned public place like a library or mall. Look into area programs that may provide air conditioners for people with disabilities for free or at a reduced cost. In the past, some local United Way chapters have collected donated units and redistributed them to people with the most need.

Here’s a list of some of Tucson’s Homeless Shelters.  I don’t know if any of them have room, but hopefully they can provide a respite from the heat for our city’s people on the streets.

“Burnout” was first coined in the 1970’s and is now used more often than the older terminology “nervous breakdown” which was commonly used for some of the same kinds of symptoms. The big difference as far as I can tell is that “Burnout Syndrome” applies mostly to work related exhaustion, while “nervous breakdown” applies to symptoms caused by an abnormal amount of stress.

“Burnout syndrome” seems to be less of a psychiatric illness and more of a general feeling of being drained physically and emotionally. I know of people who have worked themselves to exhaustion. Different situations can lead to burnout including overwhelming workload, hard work and no clear goals, powerlessness to change something important to you, conflict between your personal values and the values of the company you work for, and hitting the “invisible ceiling.”

In both cases, it’s important to try and be aware that you are headed into a burnout situation so that you can make the appropriate changes before it happens. Psychiatric care may or may not be needed, but chances are that drastic changes in life style and attitude will be.

Nine years of war in Iraq and Afghanistan have taken a great toll on soldiers who are serving repeated and longer tours of duty. USA Today this month reported that mental health disorders resulted in more American soldier hospitalizations in 2009 than any other reason—and that depression, substance abuse, anxiety and adjustment problems such as Post Traumatic Stress Disorder cost the Pentagon 488 years of lost duty in 2009.

On Memorial Day, we remember veterans and active duty service members, those who have sacrificed much in their service to our country. It is also a good time to remember those who struggle with PTSD—some of whom have never served in the military.

PTSD doesn’t just affect those who have enlisted; studies suggest that anywhere between 2–9 percent of the population has had some degree of PTSD, but the number may be higher among people diagnosed with another serious mental illness.

The consequences of untreated mental illness both within the military and in the civilian population are staggering: unnecessary disability, unemployment, substance abuse, homelessness, broken families, inappropriate incarceration and suicide. But these tragic outcomes are preventable. Treatment works and recovery is possible.

NAMI’s online Veterans Resource Center offers a variety of mental illness, policy and health care resources for veterans and active duty military members, as well as their families, friends and advocates.

Visit the website at:  www.nami.org

NOT… “just another walk”

As most of you know, we just had a very successful NAMIWalks in Tucson on March 27th. NAMIWalks Southern Arizona is the single biggest fundraising, awareness building event in this area promoting advocacy, support and education for people with mental illness and their families. A NAMI associate and friend of mine manages the Walk in San Diego that is scheduled for this weekend and was able to assist in coordinating a simultaneous walk in Iraq. Please read the following article from the NAMI website:

Army Troops in Iraq to Hold 5K Run to Promote PTSD Awareness and Ending Stigma of Mental Illness

April 14, 2010

Arlington, Va. — An Army platoon in Iraq will run five kilometers (5K) in full body armor on April 17 to raise awareness about posttraumatic stress disorder (PTSD) and the need to end stigma surrounding mental illness.

Forward Operating Base Echo in ad-Diwaniyah, Iraq will hold the event at the same time the National Alliance on Mental Illness (NAMI) affiliate in San Diego holds a NAMIWalk at a more leisurely pace.

NAMI San Diego will move out Saturday at 8:00 a.m. (PT) while 3rd Platoon, Baker Company of the 3rd Infantry Division’s 3rd Heavy Brigade Combat Team and others begin the 5K run at 19:00 hours (Iraq time).

“This is an incredible event,” said NAMI National Executive Director Mike Fitzpatrick. “NAMI is honored that Army soldiers in a war zone have synchronized their commitment to public education with our San Diego affiliate.”

“NAMIWalks across the country are about hope, recovery and community. They are fun events, but they support serious work.”

“As the U.S. Army has taught me, not all wounds are visible,” said Army specialist John Bell, who is organizing the Iraq event.

“As tough as a U.S. service member may be, many still suffer the effects of having endured life in a combat zone. The most prominent effect is PTSD. Not every combat-deployed soldier has been in a firefight, or had their vehicle struck by an IED, or even lost a friend by an enemy engagement. But the trauma they endure is nonetheless significant to them.”

* One in six veterans of Iraq and Afghanistan is affected by PTSD, depression or anxiety. Only about half seek treatment.

* One study has reported that 25 percent of Iraq veterans seen at veterans’ hospitals receive mental health diagnoses.

* Approximately 40 percent of homeless veterans have some form of mental illness.

For two years, NAMI San Diego development and events manager, Annie Dunlop told Bell, a friend, about NAMIWalks. Deployed in Iraq, he was unable to participate. This year he didn’t want to miss out. The 5K will honor NAMI San Diego’s work and NAMI efforts to help veterans nationwide through its on-line Veterans Resource Center and other programs.

A member of the family, we’ll call him the Father, was diagnosed with schizophrenia approximately fifteen years ago, but it wasn’t until this week that his sister was given that information.  They live across the country from each other and and don’t see each other often, but the sister has always know that her brother was “quirky.”  She knew he was brilliant and that he had scored very high on a IQ test while in high school and always considered him a genius.  Over the last several years she often wondered if her brother had a mental illness diagnosis, but no one else in the family thought it possible.  That is, no one besides her sister-in-law who finally shared the information after living with him for over twenty years and raising a family. 

The sister, who believes that mental illness should not be kept in the closet and needs to be spoken about feels frustrated and saddened by her brother’s family’s inability to share openly an illness that needs to be discussed.  It is the first step in reducing stigma.

All that can be done  is to encourage the family to be open.  This is an issue that they must come to grips with on their own, but here are some suggestions (some from the www.nami.org website) to anyone interested in reducing mental illness stigma. 

Use of Language is Most Important

•  Protest usage of single words like “crazy” “psycho” “wacko” or “loony” unless they refer directly to individuals struggling with mental illnesses or to the illness itself.
•  ”Schizophrenic” to describe a split decision made by Congress or any organization has become part of our cultural language. However, its misuse is being heard and corrected by many in the public arena.
•  Protest calling a person a “schizophrenic”: NAMI policy calls for PEOPLE FIRST: people, persons, individuals with a mental illness, schizophrenia, bipolar, clinical depression, OCD, panic disorder.

Above all else, get educated and know that mental illness, like any other illness is a biological disorder;  it can be successfully treated and recovery is more than possible, it’s probable.  Ignorance has caused people to abandon their family members and encouraged the person with the diagnosis to isolate themselves. 

Just like a person living with cancer or diabetes, a person with mental illness needs support and acceptance from their family and friends. 

There is a genetic predisposition, so everyone in the family needs to know what the symptoms and “red flags” are.  Sometimes is takes years, even decades before a person is diagnosed.  It is proven than the earlier a person receives treatment, the better the outcome.

Encourage our legislators to treat mental illnesses with parity so that insurance coverage is equal for mental illnesses with physical illnesses.

Bottom line is we need to accept people for who they are, with or without any illness and be there to support and encourage them as equal human beings.

If you believe, as I do, that mental illnesses are illness just like any other, than why was this man, who supposedly treated other people with brain disorders, not receiving treatment himself?  Did  anyone not notice how he was struggling?  According to the “God Blogging” post on this site, NPR interviewed others at Walter Reed who said he was. 

Which brings us back to the same problem, the same issues that continue to plague people with mental illness and their families.  Because of the stigma, because of the inattention by our health care system that doesn’t think the mind is part of one’s physical health, because of an overburdened mental healthcare system, because people suffering from a mental illness can feel isoloated and abandoned by their support structure, people with diagnosable brain disorders are falling through the cracks.  One again, as President Obama called this tragedy, “a horrific” catastrophe has occured in this country.

Who knows what was going on in Hasan’s head……Certainly listening to war stories from our returning Veterans experiencing Post Traumatic Stress Disorder was not an easy thing to do, but why is it that no one saw the signs, especially when he was set to deploy at the end of the month? Maybe Major Hasan will be able to shed some light on our questions.

It’s trick or treat time again. We don’t mind ghosts and goblins, but when “haunted house” attractions become “insane asylums,” featuring “mental patients” as murderous ghouls, we protest.

Violent stereotypes are inaccurate and offensive and the U.S. Surgeon General has determined that stigma is a major barrier to people getting help when they need it. Help send the message!

Local Attractions
Here’s an example. NAMI New Jersey is fighting an “Asylum of Terror” sponsored by a local museum and supported by a local Walmart and Dunkin’ Donuts, to name a few. Please e-mail the museum to let them know that perpetuating stigma towards persons with a mental illness is a national — as well as local — concern.

In Your Own Communities:
If offensive Halloween attractions or products appear, contact sponsors, advertisers or sellers personally. Educate them. Ask them to remove offensive parts of any attraction, advertisements or merchandise that mock mental illness.
If dialogue fails, alert NAMI members, family and friends to phone, send letters or e-mail the sponsors or stores.
Contact local newspaper editors and television news directors. Educate them about stigma and your concerns. Make the protest a “news event” and a “teaching moment.” Offer consumers and family members for personal interviews.

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Perhaps I’m just jealous, and I know this blog is probably going to cause many people to be angry with me and I apologize for that. It’s not that I don’t believe in breast cancer awareness (my grandmother had to have a double mastectomy), but as an advocate for people with mental illness I wish there was more awareness and less stigma about mentall illnesses that effect 25% of our population in any given year and causes more disability that any other illness. Yet, with proper treatment, 70-80% of people living with mental illness do recover! Still, no one knows about it! Even the National Mental Illness Awareness Week the first part of October was totally overshawdowed by “pink ribbons.”

The National Alliance on Mental Illness has called for an increase in research spending for the National Institutes for Mental Health.  Below is the statement from their website.
Please take the time to register your thoughts.

NAMI Calls for Increase in NIH Funding
NAMI is joining advocates from across the nation in asking President Obama to make medical research for improving health care a priority and support robust funding for the National Institutes of Health (NIH) and the National Institute of Mental Health (NIMH).
NAMI and other illness and patient advocacy groups are rallying advocates to contact the White House this week in support of significant annual increases for NIH.
“NAMI is pleased to join other disease advocacy organizations in support of the ‘Research Means Hope’ movement to ensure that the president’s FY 2011 budget meets the goal of making biomedical research funding a national priority,” says Michael J. Fitzpatrick, NAMI Executive Director. “Investment in medical research is the source of hope for people living with serious mental illness.”
“Direct and indirect costs of mental illness impact the federal budget overall and state and local communities nationwide, including a substantial and growing burden imposed on “default” systems such as emergency rooms, homeless shelters, police, jails and prisons.”
“Adequate investment in research on schizophrenia, bipolar disorder, major depression and other disorders is essential for our nation to address these human and financial costs. The National Institute of Mental Health (NIMH) has received more than $368 million in ARRA funding to support meritorious grants and invest in new ‘challenge’ grants and ‘grand opportunity’ grants.”
President Obama needs to continue this investment in his FY 2011 budget proposal.”
How you can help
Now is a particularly important time for President Obama to hear from advocates because he is working with his administration to determine the FY 2011 budget priorities.
• Take Action: Send a message to President Obama on NIH funding.
• Learn more: Details on Proposed Mental Illness Research Funding.

You can access direct links for taking action on the blogroll lists on this site.